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New Report Details Metrics to Measure Outcomes For Quality LTSS

Alternative funding models (e.g., Medicaid managed care) are rapidly growing service delivery models in the United States. Although managed care has existed for decades, it has not commonly been utilized for the long-term services and supports (LTSS) of people with intellectual and developmental disabilities (IDD). Because there is beginning to be an expansion of Medicaid managed care into the IDD LTSS system, evidenced-based quality standards and guidelines about managed care provision for people with IDD are more critical than ever.

IDD MLTSS Workgroup Symposiums

Starting in 2018 an IDD MLTSS Workgroup, comprised of dozens of thought leaders in the healthcare and LTSS industries, held symposiums to develop a common understanding of value-based quality measures for people with intellectual and developmental disabilities (IDD). As the industry moves to managed care, the workgroup aims to ensure that quality metrics are meaningful for people with IDD.

The first of these symposiums occurred in October 2018, and resulted in the report ‘Building The Framework For IDD Quality Measurement.’ The second symposium, which took place in March 2019, led to the report titled ‘The Move to Managed Care for Intellectual and Developmental Disability Services: Guidance for State Medicaid and DD Directors, and Payers.’

Two symposiums in October 2019 and February 2020, organized by CQL, The Institute on Public Policy for People with Disabilities, and Mosaic, formed the basis for the latest report titled ‘Alternative Funding Models for People with Intellectual and Developmental Disabilities: Quality Outcomes and Measurement Metrics.’

Goals, Outcomes, And Metrics For Quality LTSS

The report includes recommendations regarding goals and outcomes for LTSS and people with IDD, as well as existing metrics to measure outcomes at individual, provider/payer, and state levels. It shares how goals can be used as benchmarks to have a quality LTSS system and to promote quality of life. Within each goal, the report lists outcomes that can examine progress and/or achievement of the goals. The report culminates in a robust matrix which crosswalks the 21 goals and 129 associated outcomes with existing quality metrics, that can be used to measure progress for each outcome.

More Tools From The IDD MLTSS Workgroup

In addition to the full report, the IDD MLTSS Workgroup has produced additional guidance and information about the report and its associated findings. Considering the report is a detailed and thorough review of outcomes and metrics for alternative funding models, the workgroup is offering more concise and accessible resources for learning more about goals and outcomes connected to quality in LTSS for people with intellectual and developmental disabilities, along with metrics to assess how effective services are in supporting people to achieve those outcomes.

The video included here provides an overview of the report, shares short descriptions of the types of outcomes that are important for evaluating quality services, and how metrics can be used at the individual, provider/payer, and state level to examine those outcomes.

Along with the video, the IDD MLTSS Workgroup has created some materials about this report and the general workgroup findings, including a short report summary document as well as a series of 1-page infographics, which show how social determinants of health can impact the quality of life for people with IDD.

Cover of IDD MLTSS Workgroup summary document

Outcomes & Metrics Report Summary

This summary document provides an overview of the report ‘Alternative Funding Models for People with Intellectual and Developmental Disabilities: Quality Outcomes and Measurement Metrics.’ It includes general information about goals and outcomes for managed LTSS and people with IDD and the importance of measuring outcomes at individual, provider, payer, and state levels.

Social Determinants of Health Infographics

These one-page infographics share how social determinants of health (SDOH) not only help promote health outcomes and health equity, but also increase people with intellectual and developmental disabilities’ (IDD’s) quality of life. They cover the impact of individual outcomes on the number of emergency room visits, injuries, and ‘challenging’ behavior.


Since 1969, CQL | The Council on Quality and Leadership has been a leader in working with human service organizations and systems to continuously define, measure, and improve quality of life and quality of services for youth, adults, and older adults with intellectual and developmental disabilities, and psychiatric disabilities. CQL offers accreditation, training, certification, research, and consultation services to agencies that share our vision of dignity, opportunity, and community for all people.